This is a little angel - Daniel
He lives in Luxembourg
Every mother dreams her baby to be special, unique, talented.



Daniel
Unfortunately, someone's dreams don't come true
We, Daniel's parents, dream our baby just to be "ordinary".
And that requires THOUSANDS OF TIMES GREATER EFFORTS!
Daniel has a rare desease -Angelman Syndrome.
However, we'll do our best for our son to be healthy!


Here is the video of Daniel's story :

Acknowledgements
We are grateful to all who support us!

First of all, we are grateful to our neurologist, Dr. Scalais, who diagnosed the desease very early when Daniel was 3 months old and this happens really really!!! Thanks to the early intervention Daniel makes good progress.

We are grateful to the multidisciplinary team of specialists, who work with Daniel and support our family! These are the kinesitherapists: Ingrid, Francoise, Liette, Rita; ergotherapist Annick; logopedist Valerie; osteopath Ait Krim, rehabilitation therapist Dr. Ueberham, kindergarten teacher Carmen and the team.

We are grateful to rehabilitation therapists in Russia, where we try to travel for intensive treatment every six months.

We are grateful to all doctors from Angelman Syndrome Clinic in the Netherlands, where we are followed up, in particular, to neurologist Dr. de Wit, pediatrician Dr. de Heus, logopedist Cindy.

We are grateful to Dr. Zylka, Dr. Philpot and Shannon from UNC-Chapel Hill, North Carolina, USA, as well as to ASF Director Dr. Jalazo.

We are grateful to ALAN (Organization of Rare Deseases in Luxembourg), which supports us in all matters, as well as to all other AS associations.

We are grateful to all families with children, having Angelman Syndrome, with whom we stand by each other.

We are grateful to our relatives and friends.

This is a joint work related to rescue of one little angel Daniel.

At some future time, Daniel, you will obligatorily read these lines, being a healthy, handsome young fellow! Please, know, our boy, you make sense of our life, we love you immensely and will do our best for you to be healthy and happy!
— Mother and father.
Contacts:
+33626048266
my.angel.man.080519@gmail.com
Luxembourg
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